Patients and Families

Donor Registries

NMDP/Be the Match: Blood and marrow donor registry; patient education
World Marrow Donor Association: Accrediting organization of donor registries

Information and Support

nbmtLINK: Provides information and personalized support services
BMTInfonet: Provides easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants

Cord Blood Banking and Donation

Parent's Guide to Cord Blood Foundation: Resource to educate parents about cord blood medical research and cord blood storage options
Save the Cord Foundation: Promotes awareness of benefits of cord blood based on unbiased and factual information
Cord Blood Association Information for Expectant Parents: Answers to frequently asked questions by expectant parents regarding cord blood banking

Clinical Trials and Access to Cell Therapies

ISCT Presidential Task Force on the Use of Unproven Cellular Therapies Reference Guide: Outline of key aspects of unproven cellular interventions in order to promote effective communication strategies for health-care stakeholders, patient associations, and individuals, highlighting the role of rigorous research prior to treatment
clinicaltrials.gov: Registry and results database of publicly and privately supported clinical studies of human participants conducted around the world
Patient Advisory for Stem Cell Therapy and Medical Tourism: Outline of best practices and online resources to assist patients and family members in their decisions related to cellular therapy

Ask FACT

FAQ

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As a Matter of FACT

FACT inspectors have free access to all FACT training and educational opportunities.

Accreditation Success Story

The University of Utah Blood and Marrow Transplant Program began at the University Hospital in Salt Lake City in 1990. The program has been FACT accredited for 10 years, and offers suggestions for large programs considering FACT accreditation. Read more